Categories
loved things

things Pip loves

  • measuring jugs and anything like a measuring jug
  • set of pasta bowls
  • set of mugs
  • iPad and apple music. Mostly grime.
  • plastic can lids
  • biscuit cutters
  • plastic lid from Dualit milk frother
  • barcodes
  • marbles and marble runs (deconstructed)
  • sports balls: all types
  • beach balls and other inflatables
  • use of the correct knife to butter toast/make a sandwich
  • horse-riding
  • being tickled
  • hearing the words “lunch” and “bucket”
  • pretending he’s going on a sleepover but not actually going on a sleepover
  • people coughing or sneezing
  • Take a Break magazine from August 2019 (and flyer inserts)
  • vacuum cleaner box
  • decorated Christmas trees
  • bagels: the preparation and eating of by others
  • “toilet” PECS symbol
  • soaking in a hot bath
  • sleeping when he should be getting up
  • the colour green
  • Parkrun
  • his school taxi driver and chaperone
  • charity collection boxes
  • coins
  • guests
  • bookshop
  • Costa
  • automatic doors at the local shopping centre
  • the beach

There will no doubt be future posts featuring all of these and the clever tricks Pip uses to get maximum access and our not so clever attempts to stop things going cray cray.

Categories
hated things

things Pip hates

  • latex balloons
  • any carbonated drink being opened or anything that looks like that
  • unannounced/unexpected route changes
  • some trousers
  • sleeping with a pillow
  • the sound of crockery on quartz worktop
  • one of his body parts being accidentally knocked e.g. elbow
  • anyone moving anything in his room or taking anything from his room
  • anyone disturbing a set of objects he’s created
  • the wrong knife being used to butter toast or make sandwiches*
  • party poppers
  • Christmas crackers
  • unopened Christmas presents under Christmas trees after Christmas day
  • iPad behaving unexpectedly
  • the round polystyrene bases you get under some shop-bought pizzas
  • the family unit not all being together, especially when unexpected/unannounced

The ones in bold are the biggies. Have probably forgotten loads.

*There is a complex set of rules attached to this which we don’t yet fully understand.

Categories
general

petit filous

This might have been my first proper attempt at chronicling the complexities of Pip, got out of the archive from April 2018. Bear with it….

In the supermarket with Dad and both siblings, Pip makes it clear he’d like to visit the petit filous aisle. This was expected, as Pip is a bit crazy for the stuff! We can’t usually leave the supermarket without a six pack in each flavour which he will then insist on opening all at once immediately on getting home. He doesn’t really want to eat it, but we tend to encourage him to have at least a hearty spoonful out of each pot, and we’ll eat a bit of it too otherwise it would be a crying food waste. Standard protocol is that we then have to wash out all of the pots, and separate them (but only after he’s at a safe distance with his fingers in his ears, because the sound of the pots being snapped apart from each other scares him). He then takes the pots upstairs and adds them to the collection he already has. In his bed. Because he sleeps in a rustling, strawberry-scented, sea of filous pots. Hundreds of them. Today, he wanted the giant family pack in the supermarket. Dad decides this is a step too far and refuses the giant family pack in favour of a six’er. Pip thinks we don’t understand so re-emphasises his wishes which, for a non verbal child, involves a lot of noise and grappling over the filous. In the end a physical extraction is needed using the piggyback technique*. This used to be quite good camouflage for a physical extraction but it doesn’t pass under the radar quite so well now that Pip is nearly 11. Especially when he’s shrieking at the top of his voice so that everyone is nicely invited to share his displeasure. Siblings calmly help Dad gather the rest of the shopping and checkout. The angels. Fast forward to tired Dad putting the shopping down in the kitchen. Pip makes a beeline for the filous. And sticks it straight in the bin. 

Pip’s autism seems to involve him having an internal narrative which is totally different to, and often in complete conflict with, that of most other people. And because he doesn’t speak (never has!), he can’t explain the subtleties of his brilliant alternative narrative to us dumbos who are locked into a narrative dictated by society and perceptions of what is ”normal”. It’s hardly surprising then that he frequently, literally, bangs his head against a brick wall. 

Autism can be very different to Dustin Hoffman in Rain Man, being a savant with numbers or drawing, finding friendships difficult, or saying the wrong thing in a social situation. It can be not being able to speak, needing banging noise around you all the time but being frightened of the sudden sounds of a balloon popping, a polystyrene pizza base being broken or Christmas crackers. It can be banging your head against a wall and sleeping in a sea of petit filous pots.

*Big shout out to Dad for still being able to do the piggyback extraction.

Updates for 2020:

  • Pip no longer sleeps in a sea of filous pots. He totally moved on!
  • Piggback extraction technique is a distant memory, owing to a huge growth spurt. Halcyon days.